Tag Archive: cure


Chi in motion.

Ten years ago, I birthed a baby boy. He was a difficult baby, if exceptionally cute. He seemed very unhappy with his lot. He cried a lot. When he wasn’t crying he was staring out at the world through giant blue eyes that grabbed your attention and held it. At about three weeks old, he started crying every evening for hours on end. Most people told me this was colic or gas, but I didn’t buy that then and I don’t buy it now. I discovered, by sheer force of intuition, that his crying was less severe and lasted for a shorter period of time if I turned out almost all the lights, and made my apartment as silent as possible after the dinner-time feeding. I also learned that keeping his day dim and quiet helped with the nighttime crying jags.

As he got older and he developed far beyond his age, for the most part, (commando crawling by 4.5 months, pulling up by 5 months, cruising by 6 and walking by 9), he got happier. The more he was able to move the more smiles wreathed his face. When he started cruising, he would circle the room over and over and over again. Once he started walking, he always walked on his toes and would run as fast as he could. This began the day after he took his first steps out into the room. When he became more proficient at both walking and running, he would slam into things on purpose and spin and spin and spin without getting dizzy.

As he began his tactile and oral explorations, I noticed that he never touched anything with his hands first. He always touched things with his feet, played with things with his feet. I have record of this phenomenon as early as 10 weeks old.

As he got older, instead of falling less, he fell more. He would fall right out of chair at the dinner table even when sitting directly on his behind. His movement grew more, not less, awkward with time and maturation.

Whenever we would go out, he would fall into screaming fits for no reason that I could see. He wasn’t worried about not getting something he wanted, he just seemed extremely distressed. If the schedule was off by the barest fraction of a minute, he would fall apart. If something was a surprise, if plans changed last minute, if a playground wasn’t exactly as he’d expected, he would melt into a limp little ball of Chi. (This still happens today, by the way.) He isn’t a spoiled brat. He knows that no means no and I don’t do negotiations. Still, these things happen.

**note: If you see one of those parents with the screaming kid who seems much to old to be throwing a temper tantrum, consider for a moment that they may have an autistic child, or simply a child with SPD or ADhD that cannot process the sheer sensory overload that occurs at places like grocery stores and the mall**

Once he started public school things seemed to progress in a backward sort of direction almost immediately. He became uncontrollable and completely over-stimulated at all times. I had not had him assessed before public school, because I had, somehow, always figured out how to best deal with him without professional help, but school introduced a whole lot of outside influences that I had no way to control.

Fast-forward to this year. (You can read about our struggles through public school elsewhere on this blog just look under Educational Experiences in the Categories section. I’ve pretty well documented things since he was in the second grade (when things when from awful to untenable).) We started homeschooling and we’ve had our bumps along the way, but one thing stands out as a bright shiny beacon of AWESOME. Chi is better.

Chi is flourishing. He’s not cured, if there is such a thing, if I would even seek it out if there were, but he loves homeschool. He looks forward to it. He pays attention, in his way, and does the work and cooperates. We’ve been slowly working toward him doing more and more of the work himself without me having to walk him through everything, and he hasn’t balked at being asked to write more and more of the answers himself.

He is calmer. He can still meltdown unexpectedly, but it is very far between right now. We keep a schedule still and we stick to it. He knows what to expect and can even deal with things he’s not that excited about without much issue. The only time in the last few months that we’ve had major issues has been when I’ve taken him to the grocery store (or Target or mall). I’ve learned that avoiding those places unless absolutely necessary when Chi is with me is really the best course of action. It makes everyone’s lives a little bit easier.

I can’t tell you how awesome it feels to know that I made a good decision so far as Chi is concerned. I’m so glad that the investment we’ve put  into homeschool  is paying off in such big dividends. It’s priceless, really.

Chi Cure

Cousins

DJ and Mae are with us for the summer. They are the son and daughter of one of my two brothers, Doodle, and near in age to Chi with DJ and Chi being a year older than Mae. They come to stay with their dad during the summers and I’m lucky enough to get to keep them during the days while Doodle works.

Chi on the left

DJ is five weeks chronologically older than Chi, but he is decades older in maturation. DJ is one of those kids that was born middle-aged, and that is not to say that he can’t be silly and have fun because, lordy, that child has a wicked sense of humor. It just means that he is mind-bogglingly responsible and has insight that blows my socks off.

COOOOOKEEEEEES

This may not come as a surprise, but Chi has difficulties with daily things that most folks find just ho-hum. Most kids find his inability to cope and/or function to be strange at best and his little quirks that indicate that he is dealing and/or stimming flat out weird. He never really seemed to care until some time during the second half of second grade and even that was more acknowledgement that he was different without any real understanding as to why he was ostracized or what he was supposed to feel or do about it.

Mae, Abby, Chi and DJ

The one shining exception to this rule about other kids is DJ. DJ and Chi have always been close and DJ has never judged Chi as weird or strange. He seems to understand that Chi is Chi and will even say, “Aunt Beonin, he’s just being Chi” or “He’s just doing Chi things” when Chi has some sort of out of proportion reaction to something.

SUPER DJ!

DJ never loses his temper with Chi. When Chi loses his cool, DJ is there to talk him down. When Chi has a complete shutdown, DJ is able to get Chi out of where ever it is he goes. I have learned to ignore Chi’s reactions, when applicable, and DJ will take over and smooth things out.

On the stool at Grammie’s house

EXAMPLE: Chi and DJ were playing Starcraft 2 on the computers upstairs when it was time to go to the grocery store. I told those who were playing games to turn off their systems and told everyone to get their shoes on and go potty. Chi became floppy. He does not like the grocery store much and he really doesn’t like the store when he’s doing something he enjoys as much as video games with DJ. He REALLY doesn’t like the store when I spring it on him with no prior warning. (Yay, me!)

Fun on the water

So he’s the last one out the door and he practically lays in the seat instead of sitting. DJ just carries on a conversation with Chi as if there is nothing going on. As if Chi isn’t flopping and moaning and squeaking and twitching. When we get to the store, DJ grabs Pieces’ hand and Mae grabs Pynni’s and I forcibly push Chi into the store. I get the big cart that’s shaped like a car for Pynni and Pieces (two less to keep up with, right?) and admonish the older kids to keep up. Chi trails behind. Far behind.

(I’ve come to a point in this journey (the whole entire childhood one with Chi) that I don’t even react to the lagging behind. He never lets me get too far away.)

Goofiness

DJ says, “Aunt Beo, I’ll walk back here with Chi to make sure he doesn’t get lost.” I smile at him and

Best Buds

thank him. We get through the produce and past the deli. As we round the corner into the meat section, I hear a peal of laughter. I look behind me and there is DJ with his arm around Chi, cracking Chi up. There was no issue after that.

No, it’s not that Chi’s issues cease to be when DJ is here, but I am ever amazed at what DJ is able to accomplish with Chi. They are complements of one another and DJ loves Chi, Chi-isms and all.